<< Back to all Blogs
Login or Create your own free blog
Layout:
Home > Immunotherapy

Immunotherapy

October 3rd, 2018 at 08:45 pm

Hi all. I figured it was time to check in.

I was pretty depressed this summer, with all the setbacks and hospitalizations, but life has settled into something pretty close to good.

I've had 4 of the immunotherapy infusions (yervoy/Opdivo. You've probably seen commercials, and the developers just won a Nobel prize). And at least on the outside, it's changed my life. I feel normal. as in, not sick. I've been able to basically live my life like I did before I had cancer. Well, mostly.

I've spent the last month eating as much as possible in an attempt to gain back some of the 40 pounds I've lost since December. (I have no more to lose. Literally. I was down to bones. at 5'9" and 120 pounds.) finally, I've gained a small amount, only 5 pounds but enough to give me hope that I do not have cachexia, an incurable cancer wasting syndrome that is just as deadly as cancer itself.

So yeah. I feel good, and I recognize it as temporary and have been taking advantage. Taking the kids places, going out with friends, eating food. Putting up Halloween decorations and planning our annual trick or treat party. All of it.

I'm not a religious person, but I pray it lasts. I hope the medication is working as well on the tumor as I feel on the outside. The thought of going back on another pill that makes me feel awful is crushing.

So that is the update!

Posted in Uncategorized | 23 Comments »

23 Responses to “Immunotherapy”

  1. nhgirl1970 Says:
    October 3rd, 2018 at 09:07 pm 1538600860
    1538600860

    I am so happy you are doing better! I hope you continue to gain some weight.

  2. ceejay74 Says:
    October 3rd, 2018 at 09:08 pm 1538600889
    1538600889

    It's so great to hear from you, especially an update like this! I'm practically in tears I'm so happy for you. I hope it isn't temporary but I'm so glad you're enjoying life in the meantime.

  3. CB in the City Says:
    October 3rd, 2018 at 09:22 pm 1538601775
    1538601775

    What wonderful news. You have made my day.

  4. crazyliblady Says:
    October 3rd, 2018 at 09:35 pm 1538602513
    1538602513

    I am thrilled for you. Best wishes for good health and happiness in the future.

  5. Carol Says:
    October 3rd, 2018 at 09:59 pm 1538603969
    1538603969

    So good to hear from you! May you continue to feel good and here's hoping the immunotherapy works!

  6. shiela Says:
    October 3rd, 2018 at 10:36 pm 1538606196
    1538606196

    SO glad to hear this.

  7. Wink Says:
    October 3rd, 2018 at 10:55 pm 1538607354
    1538607354

    I am so happy to hear this news! I hope you continue to feel better!!

  8. mumof2 Says:
    October 3rd, 2018 at 11:57 pm 1538611031
    1538611031

    So happy that you are feeling better I'm hoping it lasts a long time and you can continue doing everything you love with those that you love {{{hugs}}}

  9. LuckyRobin Says:
    October 4th, 2018 at 02:22 am 1538619732
    1538619732

    Thank you for the update. I am glad you are at least feeling better. I continue to hope and pray for you and your family.

  10. MonkeyMama Says:
    October 4th, 2018 at 02:58 am 1538621888
    1538621888

    Thanks for the update. ((HUGS))

  11. snafu Says:
    October 4th, 2018 at 05:15 am 1538630128
    1538630128

    {{{Hugs}}} good news, thanks for the update. Keep us in the loop, we're thrilled

  12. rob62521 Says:
    October 4th, 2018 at 02:51 pm 1538664662
    1538664662

    So glad you are doing better. Glad for the update too. I have been wondering how you have been. Prayers continue.

  13. laura Says:
    October 4th, 2018 at 04:23 pm 1538670232
    1538670232


    Prayers for continued comfort! Glad you are on an upswing. (hugs)

  14. Sarah Says:
    October 4th, 2018 at 04:28 pm 1538670530
    1538670530

    So happy to hear from you.

  15. Thrifty Ray Says:
    October 4th, 2018 at 06:13 pm 1538676824
    1538676824

    It is good to hear from you and that you are doing better. It must feel so good to spend time doing normal stuff with your family, things that are so often taken for granted. I pray this new immunotherapy is the miracle we have all been hoping for for you. Hugs friend. Fall is such a beautiful time of year!!

  16. frugaltexan75 Says:
    October 5th, 2018 at 02:14 am 1538705674
    1538705674

    What a good thing to read tonight!

  17. Dido Says:
    October 7th, 2018 at 11:11 pm 1538953886
    1538953886

    So glad you have this respite and prayers that it continues!!!

  18. VS_ozgirl Says:
    October 8th, 2018 at 07:01 am 1538982061
    1538982061

    That's great news that you can feel pretty much normal! Hoping you can gain some weight and make lots of wonderful memories. Praying this continues for quite a while!

  19. scfr Says:
    October 8th, 2018 at 03:32 pm 1539012724
    1539012724

    Thank you for taking the time to give us an update. Like everyone else here, I pray that you continue to feel as good as you do now for as long as possible. Blessings to you and your family.

  20. klarose Says:
    October 9th, 2018 at 03:05 pm 1539097537
    1539097537

    So happy for you!!

  21. tripods68 Says:
    October 13th, 2018 at 06:12 pm 1539454357
    1539454357

    Man...this is great news! Hang in there....very happy for you!

  22. livingalmostlarge Says:
    October 24th, 2018 at 05:46 pm 1540403199
    1540403199

    So happy to hear from you! Happy Halloween!

  23. My English Castle Says:
    October 27th, 2018 at 09:23 pm 1540675439
    1540675439

    Think of you often and glad to hear you've received some better news and are feeling a bit better. Thoughts and prayers continue to you and your family.

Leave a Reply

(Note: If you were logged in, we could automatically fill in these fields for you.)
*
Will not be published.
   

* Please spell out the number 4.  [ Why? ]

vB Code: You can use these tags: [b] [i] [u] [url] [email]