ImmunotherapyOctober 3rd, 2018 at 08:45 pm
Hi all. I figured it was time to check in.
I was pretty depressed this summer, with all the setbacks and hospitalizations, but life has settled into something pretty close to good.
I've had 4 of the immunotherapy infusions (yervoy/Opdivo. You've probably seen commercials, and the developers just won a Nobel prize). And at least on the outside, it's changed my life. I feel normal. as in, not sick. I've been able to basically live my life like I did before I had cancer. Well, mostly.
I've spent the last month eating as much as possible in an attempt to gain back some of the 40 pounds I've lost since December. (I have no more to lose. Literally. I was down to bones. at 5'9" and 120 pounds.) finally, I've gained a small amount, only 5 pounds but enough to give me hope that I do not have cachexia, an incurable cancer wasting syndrome that is just as deadly as cancer itself.
So yeah. I feel good, and I recognize it as temporary and have been taking advantage. Taking the kids places, going out with friends, eating food. Putting up Halloween decorations and planning our annual trick or treat party. All of it.
I'm not a religious person, but I pray it lasts. I hope the medication is working as well on the tumor as I feel on the outside. The thought of going back on another pill that makes me feel awful is crushing.
So that is the update!