Small wins

January 19th, 2018 at 10:37 pm

The new doctor and his staff at OSU were WONDERFUL.

My prognosis is still bad, but I left with tons of information, all of my questions answered, and a giant bag full of samples of nutrition drinks (like ensure, but hopefully not as gross to me.)

They didn't mess around.

Sadly, though, my tumor is gigantic, filling my entire left abdomen where my kidney used to be. The liver tumors might not be tumors at all, but something I've always had.

It's obviously aggressive, since it grew back so fast after surgery, but it might not have spread. I forget the terms but it ranked 20 percent on an aggressive type test, which is bad news, but way better than if it were 80 percent.

The dr. is starting me on a more aggressive medicine because I am young and should be better able to tolerate it. It has a survival rate 6 months longer than the other pill.

Of course, the survival rate isn't great. If the treatment works, it only works for about a year, then you have to try something new, and if that works, you might get another year. etc. There are only 4 or 5 things to try, each with diminishing returns, so I'm looking at 2 to 5 best case unless a miracle happens.

I'm still profoundly bummed, but I'll take every good day I can get.

Posted in Uncategorized | 18 Comments »

18 Responses to “Small wins”

Laura Says:
January 19th, 2018 at 10:51 pm 1516402288
1516402288

So thankful for better bedside manners and information! And good news on the 20%. Don’t worry about the liver spots. They thought my husbands spots on his lungs were very suspicious in his post-cancer scan (testicular cancer). They weren’t anything. Still have you covered in prayer and do you mind me adding you to my church’s prayer tree? If not, no problem.
ceejay74 Says:
January 19th, 2018 at 10:55 pm 1516402534
1516402534

This is really great to hear. Some tiny bits of hope, and a hospital staff that are true partners to you so you don't feel so hopeless and dismissed while you fight.

Pulling so hard for you!!!!!
Laura S. Says:
January 19th, 2018 at 10:57 pm 1516402642
1516402642

So glad you found medical professionals with a better repoire.
My English Castle Says:
January 19th, 2018 at 11:00 pm 1516402855
1516402855

Sounds like a great choice to see the new doctor. And thanks too for taking the time to update us all. As ceejay and laura said, we're all cheering for you and your family.
Amber Says:
January 19th, 2018 at 11:05 pm 1516403117
1516403117

Thrift O Rama, I'm thankful to hear of the better news, I will definitely keep you in my prayers, through Hod all things are possible. You got this 💪🏾
Rachael777 Says:
January 19th, 2018 at 11:21 pm 1516404079
1516404079

great news!! hang in there
CB in the City Says:
January 19th, 2018 at 11:24 pm 1516404249
1516404249

I'm so very happy to hear more optimistic news. Treasure every good day. It's what we all should do, because who knows how many any of us will get? I have a hunch you might just surprise everyone.
Out of the Dark Says:
January 19th, 2018 at 11:48 pm 1516405700
1516405700

Miracles happen everyday. Just look in the mirror.
creditcardfree Says:
January 20th, 2018 at 12:31 am 1516408314
1516408314

I'm very happy that it was a much better experience for you!

If they are interested in providing you nutrition, you might start juicing in addition to any other supplements they suggest. And Out of the Dark's comment made me think...that yes miracles happen everyday! The power of prayer and the power of our mind over body are amazing to tap into along your journey.
snafu Says:
January 20th, 2018 at 02:29 am 1516415388
1516415388

Delighted your OSU experience was positive. We're all here sending positive vibes for every day wanting to help any way we can, offering our strength.
FrugalTexan75 Says:
January 20th, 2018 at 03:25 am 1516418747
1516418747

Glad to hear you had a positive experience.
tripods68 Says:
January 20th, 2018 at 05:30 am 1516426222
1516426222

Fight the battle each day, keep the cheer up...and I'm pulling for you!
LuckyRobin Says:
January 20th, 2018 at 09:07 am 1516439221
1516439221

Well, if each new drug works and can extend your life out long enough, new drugs and treatments are being developed as we speak. There may be something at the end of that time that is introduced that will work. I certainly hope so. Glad the new doctor is so much better. Still keeping you in my prayers.
Dido Says:
January 20th, 2018 at 09:17 pm 1516483033
1516483033

So glad you like the new team and that the news, if not great, is BETTER.
Thrifty Ray Says:
January 21st, 2018 at 03:52 am 1516506779
1516506779

Having a medical team that treats you and your loved ones with compassion is so important, even more so when you’re fighting for your life. Knowing you’re in the best care possible is what u needed so I am glad you found the right team for you! I continue to keep you in thoughts and prayers daily. XO
alliecat79 Says:
January 21st, 2018 at 04:00 pm 1516550427
1516550427

I am so happy to hear the update! I will continue to pray for you. I wholeheartedly agree with LuckyRobin. And your body may surprise them and you.
rob62521 Says:
January 21st, 2018 at 09:22 pm 1516569765
1516569765

So glad the new doctor was so much better! Although not a cure, it does sound more optimistic and maybe by the time you start treatment, things will improve and your body will surprise you and do better. You remain in my thoughts and prayers.
Tabs Says:
January 22nd, 2018 at 12:49 am 1516582181
1516582181

It's so heart-wrenching reading your entries. I wish wonderful days ahead for you, regardless of what happens or when.

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Thrift-o-rama

Small wins

18 Responses to “Small wins”

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