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Archive for November, 2018

cancer update

November 29th, 2018 at 12:05 pm

I just got Cat scan results, after 3 months on immunotherapy, so here's the latest cancer update.

I'm happy to announce that my tumor has shrunk nearly 50 percent and has not spread to other areas AND I feel like a normal, not sick person now. I've also gained back 20 of the 40 pounds I lost in the first 6 months after diagnosis. ( at 5'9", I was down to 119 pounds and I didn't have any more weight to lose .I was all bones. It was scary.)

It probably doesn't change the long-term (terminal) ending of my cancer, but I have been given the gift of more time, and the bonus gift of feeling-good time.

I have joined the lucky club of being one of the 40 percent of patients to get any sort of response to the drug. Now, if I can only get into the lucky 10 percent of those whose tumors disappear completely, I will be seriously over the moon.

Life with cancer right now is better than I ever hoped it could be, and I am taking full advantage.

I'm talking to the research department at my hospital, trying to determine if it's possible to fund new kidney cancer research, but that's in early phases.

I also miraculously haven't gone bankrupt yet fighting this cancer. Thanks to the Affordable Care Act, my insurance HAS to cover cancer care, and my out of pocket has been less than I expected,so yay. In addition to worrying about how my family will survive without me I at least don't have to worry (yet) that I will leave them bankrupt as well.

Thank you for all of your support and encouragement.