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Immunotherapy

October 3rd, 2018 at 01:45 pm

Hi all. I figured it was time to check in.

I was pretty depressed this summer, with all the setbacks and hospitalizations, but life has settled into something pretty close to good.

I've had 4 of the immunotherapy infusions (yervoy/Opdivo. You've probably seen commercials, and the developers just won a Nobel prize). And at least on the outside, it's changed my life. I feel normal. as in, not sick. I've been able to basically live my life like I did before I had cancer. Well, mostly.

I've spent the last month eating as much as possible in an attempt to gain back some of the 40 pounds I've lost since December. (I have no more to lose. Literally. I was down to bones. at 5'9" and 120 pounds.) finally, I've gained a small amount, only 5 pounds but enough to give me hope that I do not have cachexia, an incurable cancer wasting syndrome that is just as deadly as cancer itself.

So yeah. I feel good, and I recognize it as temporary and have been taking advantage. Taking the kids places, going out with friends, eating food. Putting up Halloween decorations and planning our annual trick or treat party. All of it.

I'm not a religious person, but I pray it lasts. I hope the medication is working as well on the tumor as I feel on the outside. The thought of going back on another pill that makes me feel awful is crushing.

So that is the update!

23 Responses to “Immunotherapy”

  1. nhgirl1970 Says:

    I am so happy you are doing better! I hope you continue to gain some weight.

  2. ceejay74 Says:

    It's so great to hear from you, especially an update like this! I'm practically in tears I'm so happy for you. I hope it isn't temporary but I'm so glad you're enjoying life in the meantime.

  3. CB in the City Says:

    What wonderful news. You have made my day.

  4. crazyliblady Says:

    I am thrilled for you. Best wishes for good health and happiness in the future.

  5. Carol Says:

    So good to hear from you! May you continue to feel good and here's hoping the immunotherapy works!

  6. shiela Says:

    SO glad to hear this.

  7. NJDebbie Says:

    I am excited to get an update from you. Please know that I think of you often! ((Hugs)), I hope the immunotherapy continues to work.

  8. Wink Says:

    I am so happy to hear this news! I hope you continue to feel better!!

  9. mumof2 Says:

    So happy that you are feeling better I'm hoping it lasts a long time and you can continue doing everything you love with those that you love {{{hugs}}}

  10. LuckyRobin Says:

    Thank you for the update. I am glad you are at least feeling better. I continue to hope and pray for you and your family.

  11. MonkeyMama Says:

    Thanks for the update. ((HUGS))

  12. snafu Says:

    {{{Hugs}}} good news, thanks for the update. Keep us in the loop, we're thrilled

  13. Trying to get ahead Says:

    You have been on my mind for the last few days. I am so glad that you are not only still around, but doing better. I pray you go into a very long remission. ((Hugs))!!!

  14. rob62521 Says:

    So glad you are doing better. Glad for the update too. I have been wondering how you have been. Prayers continue.

  15. laura Says:


    Prayers for continued comfort! Glad you are on an upswing. (hugs)

  16. Sarah Says:

    So happy to hear from you.

  17. Thrifty Ray Says:

    It is good to hear from you and that you are doing better. It must feel so good to spend time doing normal stuff with your family, things that are so often taken for granted. I pray this new immunotherapy is the miracle we have all been hoping for for you. Hugs friend. Fall is such a beautiful time of year!!

  18. frugaltexan75 Says:

    What a good thing to read tonight!

  19. Dido Says:

    So glad you have this respite and prayers that it continues!!!

  20. VS_ozgirl Says:

    That's great news that you can feel pretty much normal! Hoping you can gain some weight and make lots of wonderful memories. Praying this continues for quite a while!

  21. scfr Says:

    Thank you for taking the time to give us an update. Like everyone else here, I pray that you continue to feel as good as you do now for as long as possible. Blessings to you and your family.

  22. klarose Says:

    So happy for you!!

  23. tripods68 Says:

    Man...this is great news! Hang in there....very happy for you!

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