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Small wins

January 19th, 2018 at 02:37 pm

The new doctor and his staff at OSU were WONDERFUL.

My prognosis is still bad, but I left with tons of information, all of my questions answered, and a giant bag full of samples of nutrition drinks (like ensure, but hopefully not as gross to me.)

They didn't mess around.

Sadly, though, my tumor is gigantic, filling my entire left abdomen where my kidney used to be. The liver tumors might not be tumors at all, but something I've always had.

It's obviously aggressive, since it grew back so fast after surgery, but it might not have spread. I forget the terms but it ranked 20 percent on an aggressive type test, which is bad news, but way better than if it were 80 percent.

The dr. is starting me on a more aggressive medicine because I am young and should be better able to tolerate it. It has a survival rate 6 months longer than the other pill.

Of course, the survival rate isn't great. If the treatment works, it only works for about a year, then you have to try something new, and if that works, you might get another year. etc. There are only 4 or 5 things to try, each with diminishing returns, so I'm looking at 2 to 5 best case unless a miracle happens.

I'm still profoundly bummed, but I'll take every good day I can get.

18 Responses to “Small wins”

  1. Laura Says:

    So thankful for better bedside manners and information! And good news on the 20%. Don’t worry about the liver spots. They thought my husbands spots on his lungs were very suspicious in his post-cancer scan (testicular cancer). They weren’t anything. Still have you covered in prayer and do you mind me adding you to my church’s prayer tree? If not, no problem.

  2. ceejay74 Says:

    This is really great to hear. Some tiny bits of hope, and a hospital staff that are true partners to you so you don't feel so hopeless and dismissed while you fight.

    Pulling so hard for you!!!!!

  3. Laura S. Says:

    So glad you found medical professionals with a better repoire.

  4. My English Castle Says:

    Sounds like a great choice to see the new doctor. And thanks too for taking the time to update us all. As ceejay and laura said, we're all cheering for you and your family.

  5. Amber Says:

    Thrift O Rama, I'm thankful to hear of the better news, I will definitely keep you in my prayers, through Hod all things are possible. You got this 💪🏾

  6. Rachael777 Says:

    great news!! hang in there

  7. CB in the City Says:

    I'm so very happy to hear more optimistic news. Treasure every good day. It's what we all should do, because who knows how many any of us will get? I have a hunch you might just surprise everyone.

  8. Out of the Dark Says:

    Miracles happen everyday. Just look in the mirror.

  9. creditcardfree Says:

    I'm very happy that it was a much better experience for you!

    If they are interested in providing you nutrition, you might start juicing in addition to any other supplements they suggest. And Out of the Dark's comment made me think...that yes miracles happen everyday! The power of prayer and the power of our mind over body are amazing to tap into along your journey.

  10. snafu Says:

    Delighted your OSU experience was positive. We're all here sending positive vibes for every day wanting to help any way we can, offering our strength.

  11. FrugalTexan75 Says:

    Glad to hear you had a positive experience.

  12. tripods68 Says:

    Fight the battle each day, keep the cheer up...and I'm pulling for you!

  13. LuckyRobin Says:

    Well, if each new drug works and can extend your life out long enough, new drugs and treatments are being developed as we speak. There may be something at the end of that time that is introduced that will work. I certainly hope so. Glad the new doctor is so much better. Still keeping you in my prayers.

  14. Dido Says:

    So glad you like the new team and that the news, if not great, is BETTER.

  15. Thrifty Ray Says:

    Having a medical team that treats you and your loved ones with compassion is so important, even more so when you’re fighting for your life. Knowing you’re in the best care possible is what u needed so I am glad you found the right team for you! I continue to keep you in thoughts and prayers daily. XO

  16. alliecat79 Says:

    I am so happy to hear the update! I will continue to pray for you. I wholeheartedly agree with LuckyRobin. And your body may surprise them and you.

  17. rob62521 Says:

    So glad the new doctor was so much better! Although not a cure, it does sound more optimistic and maybe by the time you start treatment, things will improve and your body will surprise you and do better. You remain in my thoughts and prayers.

  18. Tabs Says:

    It's so heart-wrenching reading your entries. I wish wonderful days ahead for you, regardless of what happens or when.

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